Wednesday, January 6, 2010

Varney

Please meet Varney. Varney and his Mom are from Liberia. Varney has been suffering from hydrocephalus for a long time. His entire life we presume.


The size of his head has gotten so large that there are pressure sores on it. I can't even imagine the amount of pain that would feel like and how grouchy I would be with that much pressure on my brain. Sometimes my children are heavy when I carry them and I complain. "Whoa you sure are heavy!" But I can't even imagine how difficult it must be for Varney's Mom to carry him. Yet she carries him... and carries on with her life- never stopping and never giving up.

Varney and his Mom went many places in Liberia looking for help. They finally found a doctor to see them. This doctor has done some VP shunts in the past but after examining Varney- he felt that he was too far gone for surgery. This doctor also informed Varneys Mom that he doesn't even have the VP shunts were he willing to operate on Varney. He also admitted that sometimes the patients die- because he isn't really a neurosurgeon. He told Varneys Mom to bring him home- for soon- he would die.
Six months has passed since that time and Varneys Mom has cared for him with loving hands and a faithful heart. Varney continues to live and bless so many people with his presence. Soon with prayer and some fundraising we will be able to bring Varney and hopefully his Mom to the USA for lifesaving surgery. Supplies will be brought over for Varney and his Mom while they wait for all the paperwork to go through so that he will be able to be more comfortable and so that the sores on his head can be kept clean. If he gets an infection he could die very fast.

I know that these pictures are difficult to look at. They were hard for me at first to look at too. I can feel the pain in his eyes and the sorrow in his mothers eyes just from the pictures. Varney's head size is massive. Bigger than the worse case I have ever seen. And its imperative that we pray for him and his Mom.





Monday, January 4, 2010

New Children

As you can see from the side bar we have many new referrals for children this week. Please keep them and their families in your prayers while they wait for life saving medical care. We have also been blessed with some new volunteers over the past few weeks and we plan to update the contact information for our volunteers on this blog soon.

We will be taking the time to write more about the new children who have come into our program. We feel that in order for people to understand the trials and tribulations each one of them has gone through their stories are important to tell.

We are looking for someone or a group of people that could help with fundraising. Perhaps this is a gift you have and you want to donate some of your time to this effort. We will need to be able to help some of the referring organizations with the costs of paperwork processing in country. Some of the organizations just aren't financially in a position where they are able to cover the added expenses of $400-$1000 for testing, labs, document recovery, passport, and visa processing. And of course our largest expense is helping with travel costs for the children to come to the US or for the children to travel to another location within their country or continent for medical care.

Our host family coordinator is busy updating our host family list so that we are ready when medical care has been arranged for the new children. If your interested in hosting a child- please contact Kim at: smithjklc@hotmail.com

Thanks for reading our blog, praying for "our children and families" and caring about your global neighbors.

Saturday, January 2, 2010

Emmanuella in the news!


Some information has been changed for privacy purposes...

Emmanuella Michel, 5, is so lively that it’s hard to picture how thin and fragile she was only two months ago. She is pictured with her aunt Checelie Michel and host brother Caleb D. Emmanuella came to the United States from Haiti for heart surgery in October and has been staying with Caleb and his parents Rick and Darla D. of Washington state. Because of this family, 5-year-old Emmanuella Michel of Haiti received a priceless holiday gift — a life-saving open heart surgery.
“It’s a Christmas miracle,” said her host mother Darla . “She’s just like a normal child now.”
During an interview just before Christmas, it was hard to imagine that the robust child bouncing around the newspaper office was gravely ill just a few weeks ago — until she lifted her shirt to show off a 6-inch scar down the middle of her chest.
Emmanuella now has a chance at a normal life because Rick, Darla and Caleb D. made it their mission to help Haitian children. The idea started when Caleb met a schoolmate who was born in Haiti.
“I met Joshua P. He was friends with Caleb at Whitney,” Darla D said. “I knew in my heart this was something I wanted to do.”
Not in a position to adopt, the D family, who attend The Bright Christian Fellowship, found another way to serve.
“Our family wanted to help children with medical needs,” D said.
Through the organizations Partners in Health in Haiti and The Medical Advocacy Team, a program of Remember International, INC. in the United States, they learned about the gravely ill Emmanuella. At 5, she was unable to walk and suffered terrible chest pain.
“They would just pray over her because she could not move. God sure answered those prayers, huh?” Darla said, getting a nod of agreement from Emmanuella’s aunt, Checelie Michel.
Emmanuella’s family saved up enough money to get her to a Partners in Health doctor, whose diagnosis was Tetralogy of Fallot. This is a combination of heart abnormalities, two of which are particularly dangerous: a hole between the ventricles and an obstruction of blood flow from the right ventricle to the lungs, according to the American Heart Association. Because blood can’t get to the lungs easily, it doesn’t pick up enough oxygen.
For Emmanuella, it meant she had no energy to grow and thrive — or even to walk. The D’s agreed to host her and Checelie while she underwent open-heart surgery. Medical and travel costs were covered by volunteer doctors, Partners in Health and The Medical Advocacy Team.
After she arrived at the end of October, the first order of business was to get Emmanuella seven immunizations that were required before surgery. The D's did this with the help of Rod Dalseg, Island Hospital’s director of diagnostic imaging. Darla said she was working at Calico Cupboard when a group from Island Hospital came in for a meeting. She asked if they knew of anybody who could give immunizations as charity, and Dalseg said he’d find out.
“He called me later and said ‘I have it handled.’ So that was a miracle,” Darla said.
Dr. Jeanne Olmsted at Fidalgo Medical Associates did the job. Emmanuella had heart surgery at Emmanuel Children’s Hospital in Portland two weeks later.
“She’s been a little trooper, and so has my husband Rick,” she said.
Many have chipped in to help Emmanuella and Checelie. People from The Bridge Christian Fellowship brought them clothes, and many have come into Calico Cupboard and offered money, clothes and food, she said. The owner of Papa Murphy’s gave them free pizzas.
“Pizza is their favorite food here,” Darla added.
Checelie is making headbands and selling them for $10 each to raise money to take back to Haiti. She said the money will help her and her fiancé build a house. Darla said anyone who wants to buy one can email for more information.
The D's family has appreciated being of service, and the experience has made them more appreciative of life in our country.
“You just think, you’re so grateful for what we have,” Darla said.

Monday, November 23, 2009

Emmanuella update

Emmanuella is out of the hospital!
She is back home with her host family
and as you can see from the pictures
she is doing so well!
Rick and Darla her host parents have so many
wonderful stories of miracles that have
happened for Emmanuella and her Aunt
since they have been staying with them.

Everyone has been so blessed by this awesome
relationship and bridging of communities, cultures
and countries. What a beautiful testimony!
We are so thankful for all our volunteers!





Thursday, November 12, 2009

Surgery updates

Baby Bear is out of surgery. It went well and he will have full leg casts on for awhile. Please continue to pray for him to be able to manage his pain OK and also they are concerned because of his "big bubba thighs" that his casts might slip off. He did have a difficult time in the past with allergic reactions to the casting material so we appreciate your thoughts and prayers for Bear.

Emmanuella is still in surgery. Her bypass surgery will take another three hours. So far she is doing well- we will update once we hear more. It is a blessing that her Aunt is able to be here with her and her host Mom Darla is doing a fantastic job. Keep praying!

Updates

Berlange "Baby Bear" is having surgery today on his bilateral club feet. Please keep him in your prayers.

Emmanuella is also having surgery today for her heart condition, please keep her in your prayers.

We will update you on both of these children as soon as we hear updates post surgery.

To the anonymous commenter regarding Mercy and her treatment:
We would LOVE to hear more from you! Please do email me (Sarah) at: sisters3designs@aol.com

Mercy is being seen at CURE already and will have an EEG there next week but we would love to have the name of the neurosurgeon friend of yours if possible. Please email me with more details!

Saturday, October 31, 2009

Emmanuella and her host Mom

Here is a picture of Emmanuella and her host Mom Darla.
Please keep her in your prayers as she isn't eating much.
Thank you.

Friday, October 30, 2009

Emmanuella

Emmanuella is 5 years old and from Haiti. She arrived in the Pacific Northwest last night with her auntie. They are staying with a wonderful host family. Emmanuella is here for heart surgery. They were exhausted when they arrived and sweet Emmanuella doesn't have much energy because of her heart condition. The host Mom just called to update me and let me know that they are going for immunizations for Emmanuella right now. Please keep them all in your prayers as everyone is tired from so many "changes" and "new things". They are blessed with someone to translate over the phone as the host family doesn't know much creole. The Aunt has been cooking a lot and got to experience a US grocery store today for the very first time.

Pictures coming soon. :)

Thursday, October 22, 2009

Mercy

This beautiful little girl is Mercy. Mercy is four years old and from Uganda. Mercy needs our help desperately. Mercy has a rare seizure disorder that scared people in her country. She was found abandoned and wandering the streets. The people believed that Mercy might be possessed. Wonderful loving people took her in and have been caring for her but her seizures are getting worse. They were able to get a CT scan for her but there are no neurosurgeons in Uganda. The Medical Advocacy Team is working hard to get her the medical care she needs quickly. We are trying to bring her to the US for surgery or treatment to save her life. Doctors believe she has a rare condition called Dyke-Davidoff-Masson syndrome, where it causes her to have seizures every ten minutes or so. Her condition is worsening, she is loosing her balance, her speech has become slurred, and she has bruises and scars on her face. She's lost several teeth from her falls.

Mercy does have a helmet to wear that helps some but here is a picture of her with a large wound from one of her seizures. They are affecting her more and more each day. We have found a doctor in the US that is committed to helping Mercy. She is already on medication in Uganda and it doesn't seem to be helping as Mercy is deteriorating.

Mercy's favorite song is: MIGHTY TO SAVE
Here are some of the lyrics:
“Everyone needs compassion, the kindness of a savior, let mercy fall on me”
Mercy believes that this song was written for her- and we believe it fits her sweet personality and struggles perfectly. We are in need of donations to help with the costs of Mercy's Visa, paperwork, and travel expenses all the way from Uganda.
One of our volunteers who has been particularly touched by Mercy's plight is holding a raffle for an IPOD touch. All you have to do to be entered is to make a donation to the Mercy fund. Read more about that HERE.
Or if you would rather make a donation directly to MAT- just use the paypal link on the side bar or email us for mailing information. Please specify your donation for the MERCY fund. And please check back on this blog for updates frequently. We hope to have Mercy here before Christmas! Please pray.
Thank you!



Thursday, October 8, 2009

Host family needed ASAP near DETROIT

Another organization that we work with is in need of a host family ASAP near Detroit for a one year old baby girl who is going to have surgery for a VP shunt- please email me (Sarah) for more information at: sisters3designs@aol.com